Celine Dion’s Sister Gives Disheartening Update About Her Health


Celine Dion has been battling Stiff Person Syndrome for months now while putting her career and live performances to a halt. The rare neurological disorder has negatively affected the singer’s vocal cords and caused her to experience uncontrollable spasms in other parts of her body.

Despite making an effort to be in good condition and sing again, this seems to be the end of the road for Celine’s music journey, as her sister, Claudette, shared a disheartening update months ago. The disease, which reportedly affects twice as many women as men, has no known cure, so Celine and her fans can only hope for a miracle.


Celine Dion’s condition is “impossible to control”

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Telephone/Fax: (212) 995-1196
Celine Dion is seen in New York City.

Life has not been the same since Celine’s diagnosis of Stiff Person Syndrome, starting with the postponement of her World Courage Tour shows in late 2022 and the eventual cancellation of the whole lineup last year. She was sad about disappointing fans, but she had difficulty walking and could not help but scrap the shows.


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Celine’s new routine involves daily “vocal, physical and athletic therapy” to manage her health condition and moments where she plugs into her music or sings to the mirror. She is grateful for the love and support from friends and family, as well as the privilege of a skilled medical team, which many SPS victims sadly find inaccessible.

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Copyright 2017
Telephone/Fax: (212) 995-1196
Celine Dion at the 2017 Costume Institute Gala – “Rei Kawakubo/Comme des Garcons: Art Of The In-Between”.
(Metropolitan Museum of Art, NYC)

Celine has chosen to find the good in her situation, seeing it as an opportunity to inspire others and raise awareness about the disorder. Her new Prime Video documentary, I Am: Celine Dion, details her ordeal with Stiff Person Syndrome and her career before her abrupt retirement. The Irene Taylor-directed film also features archival footage, interviews, and never-seen-before clips of Celine in her prime.

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Telephone/Fax: (212) 995-1196
Celine Dion performs on NBC’s ‘Today’ Show.

Unwilling to concede, Celine still has hopes for a final performance and has been working with voice coaches, band members, and specialists for months ahead of a likely TV special. She wishes to close the curtains with a concert movie of her topmost hits while hoping to beat the disease and get on stage again regardless.

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