At the beginning of the year, Celine Dion faced a major setback when she had to cancel her highly anticipated global tour after being diagnosed with a debilitating neurological disorder—Stiff Person Syndrome. “Recently, I’ve been diagnosed with a very rare neurological disorder called the Stiff Person Syndrome, which affects one in a million people,” Dion announced her diagnosis in an Instagram video. “While we’re still learning about this rare condition, we now know this is what’s been causing all the spasms I’ve been having.”
In an interview with Hello!, the singer’s sister, Claudette, recently shared an update on her ongoing health battle. She discussed the challenges posed by the disease and Dion’s effort to regain her strength and start performing again.
Claudette revealed that Dion is in great pain while noting that the pains are difficult to manage as there is no cure yet. “We are keeping our fingers crossed in the quest to find a remedy for Celine’s distressing ailment. The spasms are uncontrollable,” she admitted. “You know how people often abruptly wake up due to a leg or calf cramp? It’s somewhat akin to that, but it affects all her muscles. There’s little we can do to ease her suffering.”
She also assured Dion’s fans that the singer is committed to recovering from the illness. “When I call her and she’s busy, I speak to my sister Linda, who lives with her and tells me that she’s working hard,” Claudette stated. “She’s putting in every effort to regain her health, she’s a resilient woman.”
The singer’s sister disclosed that Dion is leaving no stone unturned in her relentless pursuit to conquer the disease. With unwavering determination, she has embarked on a journey of exploration, seeking out every possible method and means to overcome this formidable adversary.
“She’s listening to the top researchers in the field of this rare disease as much as possible,” Claudette added.
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