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Stories

Celine Dion’s Family Says Her Illness Is ‘Impossible To Control’ As They Seek Answers

by Peace A

Published September 13, 2023

Celine Dion illness

At the beginning of the year, Celine Dion faced a major setback when she had to cancel her highly anticipated global tour after being diagnosed with a debilitating neurological disorder—Stiff Person Syndrome. “Recently, I’ve been diagnosed with a very rare neurological disorder called the Stiff Person Syndrome, which affects one in a million people,” Dion announced her diagnosis in an Instagram video. “While we’re still learning about this rare condition, we now know this is what’s been causing all the spasms I’ve been having.”

In an interview with Hello!, the singer’s sister, Claudette, recently shared an update on her ongoing health battle. She discussed the challenges posed by the disease and Dion’s effort to regain her strength and start performing again.

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Claudette says her sister, Celine Dion, is committed to regaining her health

Celine Dion
DAVID FOSTER: OFF THE RECORD, Celine Dion, 2019. © Netflix / Courtesy Everett Collection

Claudette revealed that Dion is in great pain while noting that the pains are difficult to manage as there is no cure yet. “We are keeping our fingers crossed in the quest to find a remedy for Celine’s distressing ailment. The spasms are uncontrollable,” she admitted. “You know how people often abruptly wake up due to a leg or calf cramp? It’s somewhat akin to that, but it affects all her muscles. There’s little we can do to ease her suffering.”

RELATED: WATCH: Celine Dion’s ‘My Heart Will Go On’ Remastered In 4K Is Absolutely Stunning

She also assured Dion’s fans that the singer is committed to recovering from the illness. “When I call her and she’s busy, I speak to my sister Linda, who lives with her and tells me that she’s working hard,” Claudette stated. “She’s putting in every effort to regain her health, she’s a resilient woman.”

Celine Dion
LOVE AGAIN, (aka IT’S ALL COMING BACK TO ME), Celine Dion, 2023. © Sony Pictures Entertainment / Courtesy Everett Collection

Celine Dion is exploring every means to overcome her disease

The singer’s sister disclosed that Dion is leaving no stone unturned in her relentless pursuit to conquer the disease. With unwavering determination, she has embarked on a journey of exploration, seeking out every possible method and means to overcome this formidable adversary.

Celine Dion
Celine Dion, 1990s. ph: Randee St. Nicholas / TV Guide / courtesy Everett Collection

“She’s listening to the top researchers in the field of this rare disease as much as possible,” Claudette added.

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